Among the most difficult tasks for assistive technology professionals is to assess a client today and then accurately predict what equipment that client will need a year, two years or even five years from now. And making those estimates can be even more difficult when the client in question is an infant, child or adolescent with a disability.
Nevertheless, funding sources typically expect pediatric seating & mobility to fit and serve a child for several years, which puts pressure on the rehab team to choose technology that will be appropriate today as well as tomorrow.
This kind of prediction isn’t an exact science, of course, but here are some factors to consider when putting together a “growable” pediatric system.
Independent or Dependent Mobility?
For some of your pediatric clients, independent mobility won’t be possible. But for many others, especially the youngest ones, selfpropelling or independent driving will be possible — if not immediately, then eventually. Therefore, one of the crucial first questions facing parents and the seating & mobility team is whether to pursue a manual or a power chair that the child will operate himself, or a stroller-type of chair that will be pushed by a caregiver.
Parents who are still working to understand a disability diagnosis may find it difficult to accept a wheelchair recommendation or may fear that using a wheelchair could discourage the child from learning to walk. In other instances, the family home, environment or lifestyle may preclude independent mobility under the present circumstances.
On the other hand, multiple studies have indicated there are many social, emotional and cognitive benefits to providing independent mobility at as early an age as possible — even if the child does eventually walk independently.
Some studies have shown that as with language acquisition, there is an optimum “window” for a child to learn to move independently, and that window corresponds with the age that infants naturally begin to crawl, stand and walk.
Research seems to indicate that giving young children with disabilities the same opportunity to explore can have a powerful effect later in life.
Building in Growability
Whether the child will be self-propelling, independently driving or using a caregiver-operated mobility device, building growth potential into the seating & mobility system is imperative.
That generally means being able to accommodate increased seat widths and depths, which can also lead to adjusting the location of the seat on the base, changing seat-to-floor heights and needing a longer frame as well.
While many seating & wheelchair manufacturers offer “growth kits” — with some offering the first one free of charge — it’s also important that those growth kits or other parts needed to grow the systems are readily available when you need them. Therefore, it’s wise to work with vendors who can deliver the parts or kits in a timely manner…since growing kids wait for no one!
Once you’ve made the seating or mobility system growable, make sure the entire team — parents, clinicians, techs and other provider staff working with the family — understand all the adjustments that are possible and how to implement them. After all, growth kits are at their best when they’re fully used.
The Importance of Adjustability
In pediatric seating & mobility, adjustability is key. For instance, with young and/or small clients who will be self-propelling, consider wheelchairs capable of switching between standard and reverse configurations. Your littlest self-propellers can start out with the drive wheels (i.e., the rear wheels) moved to the front, where the wheels and pushrims can be more easily reached, grasped and pushed.
Once the child grows taller, the drive wheels can be moved to the standard rear position for conventional self-propelling. Another area where adjustability could help: upholstery. If it’s a viable option for your young client, adjustable-tension back upholstery could “grow” the width of that initial wheelchair back without having to actually swap backs.
For families seeking growability and adjustability of function as well as sizing, some pediatric seating & positioning systems are capable of detaching and reattaching to manual or power bases as needed. That flexibility can be helpful for transportation or if the child needs the seating system to function in multiple environments.
Some manufacturers also make seating & positioning systems that can be swapped among different wheeled and nonwheeled activity bases, such as those used for schoolroom use, feeding or grooming.
Working with children who have disabilities will always include some potential element of surprise when it comes to anticipating growth. Depending on their medical conditions, family histories and individual biology, some children will grow taller but not much wider.
Others will grow wider before they grow much taller, and some children will grow both taller and wider. Creating optimal seating & mobility systems, therefore, requires careful planning beforehand, with all members of the team communicating effectively to understand the child’s goals and to tackle growth-related challenges before they come up…as well as along the way.